Please Note you can click on photo’s and Documents to make them bigger. please note also that the early ones may not enlarge, but the newer one’s will.

On a Personal Note

This website is Dedicated to the Memory of my late Nan, who without her comment, and money left in her will, to me, then none of what we are doing would have happened. and this is why we take nothing from this idea everything goes to bringing about change.

Nan’s message read  …… You could change the world if you put your mind to it, Stephen.

me

Hello, if you have not been here before, welcome to my website, my name as you can see from above is Steve Wyles, I was born in 1962 in the UK unable to swallow, I have put this site together to bring as much info I can find into one place, for parents and adults like myself to find out more instead of trawling the internet looking, my own story can be found on this site. In only 15 months I took this website, one of 3.5 million with near same domain name to the first page on google, showing Doctors across the World, that I am very dedicated to doing this site. We Sue Paul (more on who Sue can be found lower down) have gained the respect of World Doctors and Surgeon’s, opening doors for us. We are also involved in other ongoing ideas, that should help all, born unable to eat.

My Facebook page:- https://www.facebook.com/profile.php?id=100004980497666

So who are we, I hear you ask?

Steve Wyles Adult-born unable to swallow in England in 1962, I put this site together to help New Parents understand what might lay ahead.

Sue Paul, Wife of an Adult with Ea-Tef, USA who became my Friend before his death from lack of data on his condition.

Sue and I are 100% dedicated.

Bev Stark left the Team

Screenshot_2017-05-10-22-52-40-1-1

We linked up with a team of Doctors in the USA from, the UNC a Teaching Hospital and a Center for Esophageal Diseases and Swallowing.

DDW is Digestive Disease Week, USA there was the opportunity to uncover the most recent advancements in the field of Gastroenterology, Endoscopy, Hepatology, Digestive System and Gastrointestinal Surgery. DDW 2017 is one of the biggest events and organised annually. There were more than 14000 attendees and was held in Chicago, May 2017. At this years DDW, our team of Doctors presented the two medical papers and the abstracts as large posters, picked by the team @ DDW from 1000’s of applicants. For me just searchingВ using my name, and that of Sue Paul to see our names as Co-Authors was a real honour, as the two of us put the survey together, found the team of doctors from CEDAS, Center for Esophageal Diseases and Swallowing, at the UNC in USA, allowing us to work with Dr Dellon and his team, came up with the finished survey questions, that you now see on the survey found on this website.

Screenshot_2017-06-01-11-23-09_resized_1 (2)

 Eluri S, Kochar B, Reed CC, Paul S, Wyles S, Meyers MO, Dellon ES. Factors Impacting Patient-Reported Health-related Quality of Life in Adolescents and Adults with Esophageal Atresia and Tracheoesophageal Fistula. Gastroenterology. 2017; 152 (Suppl 1): S741-S742 (Mo1656). Poster presentation at DDW, 2017 Screenshot_2017-06-01-11-16-50_resized_1 (2)

Please note that included on both the posters was this website address. As it was passed by the IRB board to link the survey from, (IRB stands for Institutional Review Board. The IRB is a committee that provides ethical oversight and ensures the protection of the rights and welfare of humans taking part in research studies)

NOTE both have Citations attached

http://www.gastrojournal.org/article/S0016-5085%2817%2931659-1/fulltext#.WS_p1OQofBE.facebook

http://www.gastrojournal.org/article/S0016-5085%2817%2932577-5/pdf#.WS_oN5irsrU.facebook

To View these Posters, I have moved them to a different page, click on link below

http://www.birth-defect.org/ea-tef-tof-oa-letters-of-support/#our-posters-as-presented-at-the-ddw-2017

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Click and Save Use for FREE – Check out the PDF page to for more Free to use ideas

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2nd International Conference on Digestive Diseases December 07-08, 2017 at Madrid, Spain with the Theme of Recent advancements and therapeutic techniques in Digestive Diseases

Digestive diseases 2017

Digestive_Diseases_2017

For Abstract submission and more details about conference please visit our conference website: http://digestivediseases.conferenceseries.com/

or

Contact Adam Johnson

 

Director| Digestive Diseases 2017 | Madrid| Spain Email:

digestivediseases@gastroconferences.com

Tel: 1-800-216-6499| 1-888-843-8169

Fax: +1-650-618-1417

http://digestivediseasaesconferences.blogspot.co.uk/2017/08/2nd-international-conference-on.html?spref=fb

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Steve Wyles

Author, click link below to see

http://www.gastrojournal.org/action/doSearch?searchType=authorLookUp&author=Wyles,%20Steve&prod=HA

Next step, from this, comes two medical papers, to be written up by Dr Dellon’s team and published later this year in a reviewed medical journal.

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This Site is Run by Parent’s for Parents we are not Doctor’s What is found on the enclosed pages is from our internet research, bringing you a mass of info and placing it on here. We do get sent info from different sources, and can not confirm every single thing you read, but at the end of the day, you only have to ask your Doctor to put your mind at rest. PLEASE NOTE

*The resources on this site should not be used as a substitute for professional medical care or advice.*

THIS IS A DISCLAIMER FOR THIS SITE
This website is run for Parents by Parents of Conditions found within this site, and not linked to Charities, or receiving funds, or making a profit, funded by ourselves.
We are not here to cause any upset to other's, only to RAISE AWARENESS for OUR Children's, Rare Condition's. With the Help of World Doctors.
Although we do our best not to use copyrighted wording this site is only bringing all that is floating around on the world internet into one place to be able to HELP Parents and people trusted in looking after our Children.

Building a Site where Parents can understand the way Doctors talk using photo's, video, info sent by Doctors. Not used to make money, just to help Support the Parents understand.
Bringing the info together to build this unique site, has been a god send to families one Consultant emailed us.
(Anything found here, is here to help other's)

Liability:
For documents found on this WEBSITE we do not warrant or assume any legal liability or responsibility for the accuracy. Plus the resources on this site should not be used as a substitute for professional medical care or advice, but rather to provide users with information to better understand their health or their Child's diagnosed disorders. Specific medical advice will not be provided.

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