Hello, if you have not been here before, welcome to my website, my name as you can see from above is Steve Wyles, I was born in 1962 in the UK unable to swallow, I have put this site together to bring as much info I can find into one place, for parents and adults like myself to find out more instead of trawling the internet looking, my own story can be found on this site. In only 15 months I took this website, one of 3.5 million with a near same domain name to the first page on google, showing Doctors across the World, that I am very dedicated to doing this site. We Sue Paul (more on who Sue can be found lower down) have gained the respect of World Doctors and Surgeon’s, opening doors for us. We are also involved in other ongoing ideas, that should help all, born unable to eat.

2016 – 2017

As you will of seen on the Front Page of this website near my photo, around the bottom I talk about having TWO USA Medical Papers with my Name on, this came about after Sue Paul and Myself came up with an idea, then after phoning the USA to talk to Dr. Dellon at a meeting that Sue was at, I asked the question that then lead to us both becoming Authors of the two USA medical papers found lower down on this page.

Ea-tef and Tof-oa DNA Global Study

In late 2017 we are now involved with a DNA Study team located in New York USA, the team are:- 

The CARE Study’s team works out of Columbia University Medical Center. It is comprised of accomplished experts in their area of study. The principal investigator of the CARE Study is Dr. Wendy Chung who is a clinical geneticist. The co-investigators are Dr. William Middlesworth, the Director a pediatric surgery, Dr. Julie Khlevner and Dr. Joseph Picoraro, who are both pediatric gastroenterologist.

The study coordinator is Priyanka Ahimaz, a board-certified genetic counselor.

https://www.columbiadoctors.org/wendy-k-chung-md

http://columbiasurgery.org/william-middlesworth-md

http://www.nyp.org/physician/jkhlevner/

http://www.nyp.org/physician/picoraroj

Priyanka Ahimaz, CGC Senior Genetic Counselor Coordinator @ Columbia University Medical Center.

Sarah Stewart, Genetic Counseling Intern, the CARE study Research Assistant.

The LINK to this Study can be found on the Front Page of this Website, Click on it and then Contact the Team, fill out the online form.

.

Please find below letters of support from leading USA Professors of medicine

Meet Michael O Meyers

Please find enclosed a letter sent to our team here in England and USA by,

Michael O Meyers M.D Professor of the Surgery Department, at the University of North Carolina U.S.A.

FAC-MichaelMeyers-151016

SPECIALTIES
GI malignancy including oesophagal, gastric, colon and rectal cancer, liver cancer, thyroid and parathyroid disease and breast cancer-related procedures.

Please read his letter of support for this website and the small team that brings you the content found on it.

Click on the letter to enlarge it.

Drs Letter

~

 

say hi to the team

Evan S. Dellon, MD MPH

Associate Professor of Medicine

Division of Gastroenterology and Hepatology

University of North Carolina School of Medicine

dellon_small

Dr Dellon received his undergraduate degree from Brown University and his medical degree from Johns Hopkins School of Medicine. He completed internship and residency in Internal Medicine at Massachusetts General Hospital. After residency, he remained at Massachusetts General for two years working as a Hospitalist and Assistant in Medicine as well as an Instructor at Harvard Medical School. He subsequently moved to Chapel Hill and completed both a clinical and a research fellowship in Gastroenterology at UNC, during which he received a master’s degree in Epidemiology from the UNC School of Public Health. His clinical training has also included experience with endoscopic retrograde cholangiopancreatography and endoscopic ultrasound.

Dr Dellon has been at the Center for Esophageal Diseases and Swallowing since 2008. Dr Dellon’s main research interest is in the epidemiology, pathogenesis, diagnosis, and treatment of eosinophilic esophagitis (EoE). He also has research interests in advanced endoscopic techniques. He is a member of several professional societies, including the American Gastroenterological Association, the American College of Gastroenterology, the American Society of Gastrointestinal Endoscopy, and the North Carolina Society of Gastroenterology. Dr. Dellon receives research funding from an American College of Gastroenterology Junior Faculty Development Award as well as an intramural NIH KL2 Career

Papers Dr Dellon has published

http://www.ncbi.nlm.nih.gov/pubmed?Db=pubmed&Cmd=DetailsSearch&Term=Dellon+ES[Author]

Please Click on Letter to enlarge it

Screenshot_2016-03-17-17-28-51~

(unable to eat)

On a Personal note

We the team at www.birth-defect.org are working with a research team at the University of North Carolina at Chapel Hill, in Chapel Hill, North Carolina, USA, on an exciting new project. The dedicated professionals at the Centre for Esophageal Diseases and Swallowing are dedicated to further studying oesophagal atresia and related swallowing disorders and have agreed to work with us in spreading awareness for Ea-Tef and Tof-oa and searching for solutions.

 The following link will lead you to their centre and advances in effectuating modern treatment options with collaboration and ongoing research. More details with are forthcoming as they unfold.

 https://www.med.unc.edu/cedas

 We are grateful for the support of these doctors willing to help us. This site is all about getting answers to difficult questions. If you have any questions for the team, please contact us at:

 http://www.birth-defect.org/get-in-touch/ 

From this link, we can forward……

Our Posters as Presented at the DDW 2017

DDW is Digestive Disease Week, USA there was the opportunity to uncover the most recent advancements in the field of Gastroenterology, Endoscopy, Hepatology, Digestive System and Gastrointestinal Surgery. DDW 2017 is one of the biggest events and organized annually. There were more than 14000 attendees and was held in Chicago, May 2017. At this years DDW, our team of Doctors presented the two medical papers and the abstracts as large posters, picked by the team @ DDW from 1000’s of applicants. For me just searching using my name, and that of Sue Paul to see our names as Co-Authors was a real honour, as the two of us put the survey together, found the team of doctors from CEDAS, Center for Esophageal Diseases and Swallowing, at the UNC in USA, allowing us to work with Dr Dellon and his team, came up with the finished survey questions, that you now see on the survey found on this website.

Screenshot_2017-06-01-11-23-09_resized_1 (2)

Eluri S, Kochar B, Reed CC, Paul S, Wyles S, Meyers MO, Dellon ES. Factors Impacting Patient-Reported Health-related Quality of Life in Adolescents and Adults with Esophageal Atresia and Tracheoesophageal Fistula. Gastroenterology. 2017; 152 (Suppl 1): S741-S742 (Mo1656). Poster presentation at DDW, 2017

Please note that included on both the posters was this website address. As it was passed by the IRB board to link the survey from, (IRB stands for Institutional Review Board. The IRB is a committee that provides ethical oversight and ensures the protection of the rights and welfare of humans taking part in research studies) Screenshot_2017-06-01-11-16-50_resized_1 (2)

Eluri S, Kochar B, Reed CC, Paul S, Wyles S, Meyers MO, Dellon ES.  High Burden of Persistent Gastrointestinal Symptoms and Ongoing Morbidity in Patients with Esophageal Atresia and Tracheoesophageal Fistula.  Gastroenterology.  2017; 152 (Suppl 1): S431-S432 (Sa2049).  Poster presentation at DDW, 2017

NOTE both have Citations attached

http://www.gastrojournal.org/article/S0016-5085%2817%2931659-1/fulltext#.WS_p1OQofBE.facebook

http://www.gastrojournal.org/article/S0016-5085%2817%2932577-5/pdf#.WS_oN5irsrU.facebook

To View these Posters, I have moved them to a different page, click on link below

http://www.birth-defect.org/ea-tef-tof-oa-letters-of-support/#our-posters-as-presented-at-the-ddw-2017

Steve Wyles

Author, click link below to see

http://www.gastrojournal.org/action/doSearch?searchType=authorLookUp&author=Wyles,%20Steve&prod=HA

Next step, from this, comes two medical papers, to be written up by Dr Dellon’s team and published later this year in a reviewed medical journal.

Click to enlarge

Sue Paul and I are so proud at getting our idea to this point

poster - burden

Screenshot_2017-05-11-13-58-19-1poster - QoL

Useful Links...