This Website work’s close with Pediatric Surgeons across the globe, nationally and internationally renowned research experts like the EA Columbia Care Study Team running the Global DNA genetics study found below here, and the Center for Esophageal Diseases and Swallowing at the UNC, Both Leading USA research centers.
We have been able to link both research teams together the Columbia Care Study Team, and Center for Esophageal Diseases UNC, who we were able to help by running a Survey on this site, which is still taking in data.
I and Sue Paul (details found at bottom) hold two Medical Papers on Born Unable to Swallow
We need everyone to get behind these two ideas, and we are looking for Doctor’s Surgeon’s, Parents and Adults with these conditions to sign up and show their support for both ideas found on this site.
Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA)
Esophageal Atresia (EA) and Tracheoesophageal Fistula (TEF)
Tracheo-Oesophageal Fistula Stricture, TOFS
Vacterl / Charge / GLUT-1 / TOF / TEF / CHD
Children and Adults Born Unable To Swallow / unable to eat / Breathing / Cough /
Plus other rare Conditions linked Some might not be linked, but have been requested by Parents so there for been added to Site.