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For their understanding, compassion and help with parents of sick children.

Book your stay with them at

www.travelodge.co.uk


www.birth-defect.org

 Though my page I have been able to link up 100s of Families from across the world.

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My Facebook page:- https://www.facebook.com/profile.php?id=100004980497666

INTRO

Born in 1962 unable to swallow so before we start, let me explain why I know my condition as tofs, when I was born and growing up all my Doctors, have always called it this, and that is because a (tof) (was linked to a heart condition) watch this video below so you can understand better.

Tetralogy of Fallot (TOF)

https://www.youtube.com/watch?v=uHv2RHnTpJg?rel=0

Your see on my Sisters write up, Below, there is a photo of a medical report dated 1958, I was born in 1962, I can’t change what I was brought up knowing this condition as, so that is why I use the word tofs when explaining it.

I found this piece of paper the other day, it has my Mothers Writing on it, this is what I had to carry with me at all times in my early teens and twenties. 

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unable to eat

What is a stricture?

It is a narrowing in the oesophagus, usually due to scarring at the join, between the two ends of the oesophagus. Typically, symptoms develop within a few weeks or months after the baby’s oesophagus has been joined up, this I have read is called, the anastomosis stricture. Occasionally,  a structure develops lower down in the oesophagus and may be caused by gastro-oesophageal reflux. I have read that it is rare children with TOF/OA or EA-TEF are born with a stricture in the lower oesophagus and this is a congenital stricture. Anastomotic strictures are more likely when the join-up of the oesophagus was difficult because of the wide gap between the two ends. If the join is under tension, the blood supply to the join site is impaired and it tends to heal as a tougher and more fibrous scar. And to make matters worse, Strictures are believed to be worsened by gastro-oesophageal reflux, acid from the stomach can damage the join in the oesophagus, and can lead to more scarring.

As a baby, I was slower to feed and choked and spluttered, while being feed. This was not a ‘one-off’ episode but happened with each feed.  A structure can be successfully treated by stretching it up (called a dilatation). This is nearly always done under anaesthetic, it was for me, the surgeon, and his team, would pass a telescope (called an endoscope) down through the mouth to the level of the structure, more on this can be found on this website, with video’s etc. (I was always told, you need to be scoped, funny what you remember)

As you can see from the photo above with my Late Mothers writing on it, this gave any Doctors I came in contact with the same idea of what I had, as you will read lower down it must have come in handy for them.

Welcome to my story page

Life as a whole has been hard, but I have always been able to see the funny side of life, having spent a lot of time on a hospital ward its given me life skills that I may never have had. The ability to just talk to complete strangers, the ability of noticing what is around me, as a youngster I always knew where the pillows or blankets were kept, and how to get off the ward without being seen, a quick nip down to the local shop came in handy at times, because hospital food in the metal bowls was kinda yuck.

Watching my Father walk into the local village chemist and pick up tablets when I couldn’t swallow tablets, waiting till he had returned to the car and then telling him, Daddy they are wrong…

The none understanding of the fact I was born unable to swallow, that I really hated to eat much full stop. I remember being about 6 and Mum farmed us out to a childminder, I swallowed something that stuck, so thinking she knew better gave me dried bread to help it go down, of course, it made it worse. When I look back at what my Parents must have gone through bringing me up, but we laughed our way through it. I remember my early school days, yuck, I struggled with most things regarding school, the only good thing I was good at was making others laugh, yes, I do have a funny sense of humour.

Now school and apples, and what the teachers didn’t know. I loved apples but I couldn’t eat them with skin on, but as a child you learn how to cope with things others can’t do, I learnt from a young age how to bring food back up that was stuck, or force air or water down to clear whatever was stuck, teachers didn’t know this, worked in my favor most of the time when school lunch was with apples. Sometimes it did go wrong as these things tend to do.

Once in my twenty’s (20’s) I got something stuck, so as you do work comes first as I had a mortgage to pay, after working all day and also trying every trick I knew to clear it, I finally had to give in and go to hospital and ask for help, now this young female doctor called my name, I said hi I was born in 1962 with the condition called tofs, and I have something stuck, she replied, no you can’t have that condition your to old… she got a cup of water and said drink. After I’d drunk it she said off you go nothing wrong with you, you know when you’re lost for words, well I was and I left the hospital. Now I am a stubborn sod, as my dad would say, three days later same Dr they put me on a ward. On a Friday having been there 3 days I was asked if I would like to spend the weekend at home because they might need my bed??? Monday I returned put back on the same ward, the young Dr came around as said they had set up a barium meal X-ray, I said that I wanted her there to view what was going to be seen, she laughed saying yeh yeh.

Barium meal, that was like swallowing chalk, later on, they would add flavouring, that was so your brain told your stomach something nice was coming. Anyhow so from behind the screen you heard OMG what is that stuck there, from the young Dr, my reply being is chestnut from my last meal 9 days ago being a Chinese takeaway. I spent 10 days in total in the hospital because a Dr said I couldn’t have the condition known then as tofs.

As you see lower down I worked in England’s biggest man-made marina for 16 years in the boatyard, I got to know the Dr I was under at the hospital, so one day I asked him something, when I found him on a pontoon checking his yacht in bad weather, Sir, I have an idea, how about you look after me by seeing me fast if something stick’s and for that I will make sure your yacht is always tied up well in storms, that was a fab idea and worked really well, until I left and he retired.

On this website you will of already read how and why this site came about, on the PDF page there are many free to download and use idea’s, to help bring awareness at a low cost to you these are the car sticker idea I had. 

 

rear window car sticker

The rear of a car.

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Side Window, see how they stand out. Print yours from the PDF page for FREE.

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These are key rings we used to sell on this website, using two website addresses, both linking you to this site. We don’t sell them now.

 

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Look Our new Car Sticker, get your printers to download the PDF file and use it however you like.

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Link to the PDF page where it’s free for you to download and use item’s found there.

 http://www.birth-defect.org/pdf-files-tof-oa-ea-tef/#car-stickers

This is the name of this website now (Birth-defect) and now covers everyone.

I hope this give’s you an insight into being born unable to swallow in 1962, enjoy the rest of my story page…..

Just something I would like to add about a beef burger and a white bucket, you see in my late teens I moved in with my Nan as my Parents had moved away for my Fathers job, I had a job building high-class sailing yachts, and at 19 was buying my first home, Nan said I could live with her until my home was mine.

It was a normal night out on a Saturday with a few mates, I remember being on a bus in Brighton, one of my friends said let’s have a burger……… well yep you guessed it, it got stuck, when I got back to my Nan’s house I was able to push it down, 20 minutes later i coughed up small amount of blood, which then turned into a rush in Nan’s bathroom, there was so much it even blocked the sink, Nan didn’t panic, unlike myself, she called for an ambulance, and two turned up??

I was rushed into Brighton to a smaller hospital, not the main one, out the corner of my eye I could see my Nan carrying a white bucket, it looked heavy too, god only knows what she had put in it. In the hospital the nurses took me into a side room to yes you guessed it, to take blood, the nurse said your Nan can wait outside, then I said I don’t do needles to which the Nurse said you can cuddle me if it helps, I thought, result lol

Nan later said she just heard a loud bang, I’d fainted taking the Nurse and table and me to the floor. I was transferred from that hospital to main one and back 4 times, to cut a very long story short I spent the worse part of my life throwing up blood for the next few weeks, I spent 9 weeks in the hospital. I don’t eat burgers now either, on the flip side of this nightmare, the Drs found I had something that I then had to take tablets for that, they tasted like chalk, for 3 years, 4 times a day. They had found a hiatus hernia. It wasn’t till I was fully on the mend yet still in hospital I asked Nan what on earth she was carrying in that white bucket.

bucket

 

Yes the white bucket, she answered,  the blood from my sink from you. I thought you might have needed it. (shock works in funny ways) whenever I see a white bucket I always smile. xx R.I.P Nan

If you ever wonder why you had a child with a condition then go read Three Angels on the Parents page on this site, link below.

http://www.birth-defect.org/ea-tef-tof-oa-stories-from-parents/#three-angels

And maybe children pick their Mothers? Click here and make sure you can hear the music and hear every word of this lovely song.

Meet Your Mum song

https://www.facebook.com/donnataggartcelticlady/videos/1160386870671263/

~

My Name is Steve Wyles.  (Find me on Facebook)

 My Story Born in 1962 unable to swallow

Before you start to read this, can I make the point that as a baby, having the two ends of your Oesophagus joined, does not mean your fixed and that’s the end of it…. for most children and adults born with this condition, no way have you been cured…..

Take it from someone who knows, l was born in 1962 and still struggle to swallow with every meal. As a child l hated eating, because it hurt, and if food got stuck it meant l was taken back into the hospital. As is the case at my ripe old age, if i can’t clear the blockage, its back to Hospital I need to go.

So my advice to anyone who knows a child who was born unable to eat….. GIVE EM A BREAK, it’s hard going as a kid with this condition, and for family, made harder by those around them who think once you’re …… fixed you’re CURED……….IF ONLY. 

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I was born in Lyndhurst in New forest in England on 10/8/1962, back in the day when surviving an operation to re-arrange your feeding tube and your windpipe was kinda rare. I was there for a few days when it became clear that something was far from OK.

Every time I was fed I would choke it back up.

I was rushed to the Children’s Hospital in Southampton, were the Surgeons, were general Surgeons back in those days. They found out I had something they called T.O.F. a/o. My feeding tube that should have gone down to my tum, was attached to my windpipe, and windpipe attached to my belly. This caused me to cough like mad when feeding.

From what I have been told, the op to swap everything back to how it should have been took hours. Well, someone has to be different I guess…   I now have what is like an hour glass in the middle of the tube running down to my tum. Every meal sticks at the point of repair as there are no muscles to push it downwards.

I have spent most of my life up to the age of 29 in and out of Hospital, having things stick. Plus while growing you find the structure area gets narrower, and this had to be made wider, to allow food to pass through, this area, I found after the op, I’d eat tubs of ice cream, and suck on ice cubes, I found the cold helped with the soreness.

It was fun at school when the other kids would say, “Bet I got the biggest scar!”

Yeah right. Mine looks like a shark has had a go. I even have a few holes (drain holes). I used to tell people a shark had me, and they shot at it but hit me… Fun to tell on the dive boat when I’d scuba dive. Some of the looks were priceless.

Anyhow enough about me. So you ask, why have I set up this website? Throughout my life in and out of the hospital, I never meet or was told about any other person who had this thing called TOF/AO. I just plodded on in my own way thinking l was on my own. Until, one day when l was 48 years old and while talking to someone I’d known for over a year…….. yes a year….. we realised we had the same health condition. We were both born TOFS. She had ‘long gap’ which meant in her case, less time spent in the hospital, unlike me with the ‘short gap’. Lucky lady…

This Photo is like the wards I was on, growing up, play tables in the middle of the room, and a TV at one end of the ward.

hospital wards

 

Student Nurse 1960

student nurse 1960

 

Matron and Nurses, 1960s

Matron and Nurses, 1960s

 

As a child going in out of Hospital there was no messing around, the Matron was in charge of the ward, and the Nurses cleaned the wards, and they were spotless.

One memory I have is having to lay in a bath made of metal filled with water and salt was added, to help heal any open cuts I may of undergone, that had stitches on, I had to lay in bath till the water went cold……. might be why I hate cold water, who knows. 

I was brought up being told that I was born with Tracheo-Oesophageal Fistula, and because of the op to rejoin the two ends, it there for gave me the (structure) I call it my hourglass effect, (where the hour glass sand trickles through the narrowing) I was brought up knowing my condition was called tofs. 

A tale from a nurse

In 1962 I was a Staff Nurse at Southampton Children’s Hospital working on a Surgical Ward. I remember admitting a 24-hour old baby boy who had been born in the local maternity hospital.

On being offered fluids he had coughed and spluttered and became Cyanosed and Distressed. On admission, he was placed an incubator in a cubicle. He was specialised and needed suction and oxygen. He was fed intravenously whilst investigations were carried out. The conclusion was that he had a Tracheoesophageal fistula and an Oesophageal Atresia. At that time surgery was carried out by two general surgeons from the General Hospital who both did regular routine lists and also dealt with all emergencies. This condition was rare and surgery was complicated. It entailed removing the two dead ends of the and stretching the ends and Anastomosing them together under tension and closing the Fistula between the Trachea and Oesophagus.

Despite Stephen’s small size, he made a good recovery, feeding was introduced very slowly. He was discharged home with his parents who coped amazingly well until weaning was introduced.

From then on life was very difficult for Stephen and his parents. Food had to be thickened very gradually and everything solid could cause much distress, Coughing, Choking and even Vomiting. Stephen had to learn to eat very slowly and chew everything thoroughly; he had to cut everything into small pieces.

He became a quiet and withdrawn little boy who was slow to talk and socialise. He and his family learnt by experience to cope despite No Support. Socially things improved and by the time he was four and at playgroup he was a happier little lad who socialised well with his peers and doted on his new baby sister.

Medically the problems began at this time, he had grown taller and the Oesophagus as it stretched, narrowed around the Anastomosis and eating became difficult.

From then on Stephen had regularly to be admitted to the hospital to have an Anaesthetic and have the narrow area stretched. This is something that is etched in his memory as in the early day’s parents were not allowed to stay with their children. These admissions carried on for many years.

Since he was 40 Stephen has coped without surgical intervention. The life he has lived has made Stephen into the mature, confident and caring person he is and I admire him for his desire to help others who have the same condition.

Ten years after nursing Stephen I worked on the new Neonatal Surgery Unit where babies from the whole region with this condition were treated. The expertise and treatment has changed radically. The Staff and Surgeons are Paediatric trained and the babies have a much better chance. Medically things have improved greatly but has the Follow Up Support?

Hopefully, this new venture will help change this.

We can live in hope this idea will help.

Hi, I’m Steve’s sister.

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I am two and a half years younger than him. These are my memories of living with a TOF’S Brother.

We grew up with it being called tofs because of this Printed in 1958

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My earliest memory of Steve is a time when he had been ill. Because he had been in the hospital, Mum and Dad had let him sit in my rocking chair when he got home. As you can imagine I was not best pleased and protested loudly! He just sat there smiling at me as I was told not to be mean and sent to bed.

At dinner times we used to have to all eat slowly so that Steve had someone to eat with, otherwise, he would not finish his dinner. I still eat slowly now and have been accused of picking at my food, when I am actually enjoying it.

At quite a young age I soon realised the one thing I was better at than Steve, was swallowing food. So, I used to dare him to try and swallow different food types. One day I said,

“Look I swallow a cherry stone, bet you can’t!”

Not wanting to be beaten he attempted to swallow one! Oh, my!

He started choking and trying to vomit. It was horrible. Next thing mum is rushing him off to the hospital and I am left with a neighbour.

He was ok and came home a few days later with the culprit stone in a specimen jar! I felt very guilty and refused to visit him in the hospital. Steve got his own back on me many years later when he ran away from me in France, leaving me to get so badly lost that a search party had to be called!

I sometimes felt left out and was a bit jealous of the attention Steve got from Mum and Dad when he choked or couldn’t swallow his food.

My other memories of Steve as a TOF sufferer are:

  •  Him having his big scar and telling everyone it was a shark bite.
  • Our Dad saying it was a Badge for tofs (the Scar) be proud Son.
  • Putting all his food in on bowl and mixing it up with lots of gravy.
  •  Steve eating Rusk biscuits….. in his teens!
  •  Steve making the weirdest faces when food got stuck and even stranger expressions whilst trying to get the food to go down.
  •  Only eating the brown meat from a chicken or turkey and hating chicken breast because it was too dry,
  •  Fainting when faced with needles, injections or the site of blood.
  •  Being really aggressive after general anaesthetics so the porters had to sit on him!
  •  Being the most annoying brother ever … But also knowing that if I was ever in trouble or needed help he was right there by my side sorting everything out.

My father’s perspective

Steve’s mum was in and out of labour for 10 days before giving birth to him. Two days later the doctors realised that Steve needed an immediate operation and I received a phone call at work asking me to come at once to the hospital to sign the consent form. Fortunately, I had an understanding boss.

Steve was in the hospital for three months and during this time there were around 12 babies born with similar problems. One by one, they died. When we were at last able to take Steve home, there was no support group and we had to “suck it and see”, working things out by ourselves.

It could take up to 2 hours to feed him, a long time in the middle of the night after a stressful day and with work in a few hours.

Later, when a young child, he was given a cherry, stone and all. The stone stuck, how to get Steve to the hospital quickly, no phone, it was evening rush hour, an ambulance would have to cross the city. Marea had the lone of a “bubble” car (it was the early sixties), so she set off. Stirling Moss had nothing on a desperate mother; hand on the horn, weaving in and out of the traffic! What did other drivers think? But, she did it.

Yes, it was hard at the time, very hard, but we worked together and can look back and see the funny side of things. me

 

 

I am around 18 – 20 here

Girlfriends account Pauline Early 1980

Our story

I was on the bus going to the train station a few weeks ago. I was looking at a website on my phone, I suddenly came across a story you are all very familiar with!

I was obviously engrossed as I nearly missed my stop. Some man said wakey! Wakey! I replied I wasn’t asleep just reading. He replied it must be a good story! It wasn’t good it was better than that! It was eye opening; some of it made me feel guilty. Some of it taught me stuff I didn’t know.

Surprised! I spoke to Steve and he suggested I wrote the story down so here we go!

Initially, in reading Steve’s story I thought how could I have missed what the problem was. I was relieved that he also wasn’t aware he had a condition that others shared. I suppose also that’s what the website is about raising awareness.

Guilt over!!!!

About 30 years ago, I was asked by a friend and his sister to go and see his sister’s boyfriend as he was in the hospital. I don’t remember much about that visit other than a story about an apple getting stuck, which had caused a tear in his oesophagus and reports of a sink full of blood. I remember going back the next night not sure why may be the girlfriend couldn’t make it; I offered to get something for this guy as his Nan lived near my home address. Funny, really I never saw the girlfriend or her brother again.

I visited every night for several weeks. Obviously, this was to practice my bedside manner for my chosen career or maybe it was because I liked this guy. This man was kind; he had a sense of humour and whatever he was going through he tried to help others with kind words, the sense of humour came in handy for the months to come. Well, this guy came out of hospital he returned home. His cottage was near my college so I was able to visit regularly either before, after or during college. He got to experience my cooking that sense of humour came in handy again, 50 things to do with a chicken breast mainly involving condensed soup I think mushroom was a favourite. Shades of Grey sludge.

Reading the web page, Chicken was probably the worst thing to cook. He became well and the rest of the story is history boy meets girl etc. I went off to study Nursing, distance eventually finished the relationship. We stayed in touch he came to my wedding, my sister said on the way to Croydon, hey, if the groom doesn’t turn up you could stand in, she was concerned he was choking on something as he went very white.

This guys condition didn’t affect us other than sometimes he was tired, probably the medication he as taking and obviously being aware of him eating things that would get stuck.

You may have guessed the man in this story is Steve; I wanted to say I am proud to call him a friend, I am proud of what he had achieved in such a short space of time with the website how he has been inventive with the free to download posters, letters and cough posters for countries around the world, but I do wonder what he will come up with next?

So there you have a quick insight into my life from those close to me.

My sense of humour has helped me get through my life in and out of Hospitals, allowing me to pick up life skills as I go, I now notice more around me than most do, I find it very easy to talk to complete strangers, I am a very stubborn person, I am just a happy go lucky chap, I try each day to make two people laugh, because laughter puts a sparkle back into your eyes. Dr’s have said to me in the past, you know you won’t be able to do that because of your condition? My view was ok, I need to try that little bit harder to overcome what they thought I couldn’t do.

As a child I used to dread meal times, but because of the way my Parents were there was no getting away with leaving food, times were hard, I respect my Mother and My Father for the way they struggled to get me to an age where I could understand better and talk to them so they also understood from my point of view.

To date I don’t eat burgers in my early 20s I forced down a burger after it stuck, it had a small splinter of bone in it, which opened me up like a can opener as it went down. (Dr’s comment) One of the scariest times of my whole life, to date.

I spent 8 weeks in Hospital, that’s when they found I also had a hiatus hernia, so something good came from something bad, I remember saying to my Nan after they put me on these white chalk tasting tablets, ‘these are just yuck, I won’t be on these for long’  Little did I know 3 years one 3 times a day. Then I was put onto Omeprazole at 25 back then my Dr said these are a £1 a tablet. This small tablet changed my life I still take it now and if I forget by dinner time I feel ill.

As your Child gets older things should get easier for you, and like me they will find their way to cope with things sticking, trust me I know, in 7 days time I will be 52. (10-8-62) I hope this website has helped in some way for you. Getting the awareness of your child’s condition noticed and understood more is now down to you.  I have a saying which goes like this. (there’s no point in worrying over something you can’t change. But If you can change it, why worry) x

My Scar as it looks now, at 53, or the Shark Bite as it looks now lol Used to scuba dive, had some real funny looks

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When you think it can not get any worse

Added just after my 55th Birthday 2017

I suffer badly with constipation, always have done, this is a true story when I was about 46, I had just had my dinner and I started to feel really unwell, so I went up stairs to the toilet, which was next to Josie’s room, she was young at the time. I remember I started to sweat real bad which is strange as I never really do, I started coughing, to be honest, I didn’t know what to do with myself, I felt sick, the pain in my stomach was getting worse too, Sam my wife came up and asked if I was ok? as my coughing had woken Josie up.

I remember thinking I need to contain this so I stripped to pants and T-shirt and got into the bath, where the thought was, it would be easier to clean. The pain, the coughing the sweating just got worse that my wife called for the Paramedics on an emergency No. They came fast but I was also in for a shock, they were not happy that I had climbed into the bath because they had to somehow get me out. I remember being put onto a seat so they could carry me down the stairs, I remember very well Josie crying and saying, my daddy not well. Even to this day if I cough badly she gets all funny with me.

I was taken to the ambulance parked up outside our house, my mother-in-law turning up to look after Josie. The crew had no idea what was wrong with me, but my heart rate dropped, and they had to stop I remember, on the way to hospital my heart rate dropped again, on reaching the Hospital the team were waiting for us, they were on it in a second, then panic set in, unbeknown to me my heart rate dropped to 19 beats, they pulled my wife into a side room and told her I might not make it. (I think it had something to do with Hospital feeling like home, and knowing I was home I relaxed) so from an already low heart beat, it just went lower.

while there in the middle of all this, a nurse inserted a catheter into my private bits, which hurt like hell, but I wasn’t happy to hear someone then say its the wrong size it needs to be changed….. like it hurt enough the first time around lol. maybe it was this that brought my heart beat back up?

I was placed on a ward near by, and my Wife was allowed to sit with me, if I am honest I don’t remember much after this. The English NHS Hospitals did have a lot of foreign nurses on the wards at this time, I remember coming to and thinking where the hell am I as the nurses were not talking English, which I found unnerving, to be honest. One such time one came to my bed pulled the curtains around my bed, while my Sister sat there, (who herself was a Staff Nurse on an intensive-care ward) this foreign nurse had not asked who she was and started to undress me for a good old famous NHS bed bath. I mean I am close to my Sister but not that close lol. I heard a few words from my Sister to the nurse before Helen left.

Ok so after two days on the small ward they decided to transfer me to a different ward. So I am loaded onto a transport bad for the ride upstairs, on route, I had two foreign nurses, and two English porters, now I like a bit of banter like most, and the porters were teasing these nurses, in the lift we went, and there was a quite bang, no one took much notice…….

Until I screamed with such pain in my lower bits, the slight bang was the catheter bottle falling off the trolly bed the wrong side of the lift doors. I have never screamed at a porter like I did at that moment, my bed sheets turned red, this extended my stay in the hospital, for a longer time, the reason I was there in the first place was due to constipation, although I had been going it seems, not enough. At the time it was not funny, over time we have come to laugh about it all. Plus I have learned a few things from all this.

Never get in the Bath…. if feeling unwell

Plus I never made a complaint against the nurses or porters, as I was most likely in the middle of the banter between them, and they knew they had messed up.

.

Two funny stories that came to my mind today, these happened to me.

1st/ As you may already know, some of us old folk, though the use of some types of early drugs have a yellow tint to our teeth, not white. Plus our teeth are weak in makeup. In my 20’s l was having plenty of problems with my teeth, some just broke when eating bread, so l had to be mindful of this. I had to go to the Dentist to have a wisdom teeth taken out because the side broke off. The Dentist drugged me up and out came the tooth and home I walked. A few hours later l woke up in a hospital bed on the (DRUGS OVERDOSE WARD) on my way home I had fallen over in the street and someone had phoned for an ambulance, l was out cold away with the fairies, the Dentist had, in fact, overdosed me. I spent 3 days on that ward before they let me home, and 7 days off work to allow for the drug to leave my body.

2nd/ While in Hospital waiting to have something removed in my late teens, I was in the theatre when the Dr said open your mouth while l spray the back of your throat, I said, so your not doing this under general anesthetic? Nope he said, so I swung my legs over the side of the trolley, hopped down and with my hospital gown flapping like it always did, I headed for the door, He said, where are you off to, I am going back to my bed …… until you do this under what I had signed for, It won’t hurt Dr said, I replied so you have had it done yourself ?? No, but it won’t hurt…… I had walked half way across the Hospital to my ward when the Staff Nurse got to me telling me they were going to do it under general.

After returning back to the ward on a trolley after the op, I felt rough, to say the least, I hurt, it felt like I had run miles and been involved in a punch up, my chest, arms, legs were bruised ????? When I asked Staff Nurse why l looked like I’d been in a fight, she said that I’d had a very bad reaction to the general anaesthetic on the way back from the theatre, and the only way to have stopped me from bouncing off the trolley was for two people to have sat on me ……………. I always thought about that day, why it was that happened, I guess the Dr didn’t like getting flashed by my backside as I walked out his theatre lol (Joke)

 Royal College of Physicians

(PLEASE READ)

This is very interesting if like me your classed as getting on a bit, but felt you wanted to know more about the Physicians that saved your life or that of your child’s, then what I have here is something I feel you may like to look at, the roll of the Royal College of Physicians (Munk’s Roll), first published in 1861, was originally compiled by the then Harveian Librarian, William Munk. He researched obituaries for all fellows dating back to the foundation of the College in 1518 (and also included licentiates up to 1825). As such, Munk’s Roll is a valuable biographical resource for those interested in medical and social history, and for family historians. Eleven printed volumes have been published and, since 2000, Munk’s Roll has been published online, The links below will explain themselves if you’re into history, then this to may be of interest to you.

http://munksroll.rcplondon.ac.uk/Biography/VolumeV

Look up your Physicians biographical obituaries

http://munksroll.rcplondon.ac.uk/Biography/Search

Covering the Jobs I have had

Some of the things I have done in my crazy life.

Driven this Travel Lift this icebreaker was just under 57 tonnes,

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notice how flat the front wheels are, The travel lift max lift was 60 tonnes. The wheels were the same found on aircraft it was written on the side wall max speed 240 mph, we did a max 4 mph took 5 of us to change a tyre, this was a hard job and a lot of bending over which made me feel ill at time’s, even my Dr said I wouldn’t be able to do it for long, how wrong he was. 

 

 

Learnt to drive this 37 tonne Jones Mobile Crane above zoom in your see my head driving it, I loved this machine, it was old but boy did it do the job in hand, I once lifted a 35 foot Princess cabin cruiser, that was an interesting lift. 20120806_171958Everything is possible in life, you just need to trust, work as a team, and have pride in what you’re doing.

A true story.

While I was in the crane, one time, like the photo above shows, a guy drove into the boatyard, passing the sign that said no parking in yard, he then parked it where you see a trailer above, I leant out of the cab and said ” Sir, you can’t park your car there we are lifting yachts” to which he replied ” I will park it where I like. About 1 hr 30 minutes had passed when he returned, you could see he was looking for something as he looked kinda shocked his car wasn’t where he had left it. So my banks-man (team member for crane) walked over and said, ” Sir can I help you” The fella said yes I left my car here, and it’s now gone? On that my teammate asked what did the car look like, Fella said ” it is a RED Convertible Porsche.

My team mate said ” yes and the top was down” I have seen that car. He took him to the red handrail you see in the photo, they looked over the rail and about 17 feet down they saw a RED Convertible Porsche sitting on one of our bigger 10-ton pontoons, we had craned it out of our way. the guy went nut’s but was shown the sign that said, no cars allowed in the boatyard.

We did crane his car back up, but never saw him again after that. Some people in life believe they are better than other’s but we are born and die, what you do in between is the important bit, we all contribute something to the world we live in, some like to throw their weight around, but there is always a different way around daft people, I have never understood those that put others down to make them self’s feel bigger. Be nice I say then doors will open.

Never say No always try something once, yes that’s me, hanging around at around 90 feet up. 20120806_172047

 

 Me working in the boatyard

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Me and a very good friend, he is the older looking guy lol 2011-09-13 18.46.39

 

 

 

 

 

20120806_172149Moving yachts in Marina, I loved this job, last yacht I moved was 82 feet long using the launch you see here, tied along side hanging of the yachts rear, then you become the engine, overall length was around  92 feet long. I spent 26 years working with yachts of all sizes.

Left School at 15 struggling to read having bad Dyslexia

My first job after leaving school at 15 was building high class yachts, I laid the full teak deck’s and everything top side, capping rails, tread-master none slip, rigging etc, loved this job to.

Company Name was Pheon Yachts Ltd, From Newhaven East Sussex England.

Click on photo’s to enlarge them

 

 

Teak Deck being laid by me 515d56_9daa4915c36644d5a311639d48d7e145

 

                                                            Can you spot me? 515d56_79d7bd75756a4b378a784189c107a391

Teak deck Finished Vancouvor

 

 

 

I worked doing the yachts for 9 years, for Pheon Yachts, until the company closed. Below is an old photo I have found of the only Vancouver 38 foot yacht with full solid teak deck, laid on marine ply bolted to the steel framework, I know this because I laid the full teak deck with my team of 3, when you have a one off build everything takes longer as its all new as to how it will look when finished. I for one was very proud to have been involved, in building this lovely 38 foot yacht.  515d56_e6e1e724414047a2bf0cf8ef6717ac8f

Click on photo’s to enlarge 

 

Same Yacht under sail all 38 feet of her. My job was to fit everything top side, this was one very interesting build.

vancouver 38

 

Having a house on a mortgage I had to find a job fast, so I thought I’d try night work, stacking shelfs in a big supermarket,  it was a total scream, laughing for 12 hours a night, fab team mixed with guy’s and lady’s I did this for around two years.

I then went onto doing a job cutting mirror’s and building mirror warddrobs for around 18 months. Before I saw a job working with yachts.

I got back into working with yachts, which excited me as my love of boats was strong.  (my Father had back tracked our Family tree and found that we where boat builders in the North of England and built boats and sailed across the open ocean’s. So for me it seemed this was in my blood, for my Dad he has viking blood as it has been seen that some viking had trouble with their fingers, which it seems my Father has the same problem).

After driving machines that lifted yachts up to 60 ton’s that most could only dream about doing, and working on luxury yachts, of all sizes and types, moving them around marina I wonted to do something different, what could I do?

How about becoming a jeweller…..

This has to be the biggest challenge I have ever under taken repairing safty chain links on bracelets, I made my Sister’s 40th birthday present, within 3 months of starting. I have always put 100% into every thing I’ve tried, I don’t read well but learn things by being shown rather by being given a book to read.

This website is dedicated to my late Nan who had the belief that if I put my mind into something then I would give it 100% this is what I have tried to do, even bringing you with a small team of other dedicated people the first ever world survey that held the world known IRB tag to run legal across the world.

Thank you for visiting my site, please tell others it’s here help spread the awernerness across the known world.

Team work will work if we join together.

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