I found this Old Passport photo, I am in my mid 20’s in this photo.
My sense of humour has helped me get through my life in and out of Hospitals, allowing me to pick up life skills as I go, I now notice more around me than most do, I find it very easy to talk to complete strangers, I am a very stubborn person, I am just a happy go lucky chap, I try each day to make two people laugh, because laughter puts a sparkle back into your eyes. Dr’s have said to me in the past, you know you won’t be able to do that because of your condition? My view was ok, I need to try that little bit harder to overcome what they thought I couldn’t do.
As a child I used to dread meal times, but because of the way my Parents were there was no getting away with leaving food, times were hard, I respect my Mother and My Father for the way they struggled to get me to an age where I could understand better and talk to them so they also understood from my point of view.
To date I don’t eat burgers in my early 20s I forced down a burger after it stuck, it had a small splinter of bone in it, which opened me up like a can opener as it went down. (Dr’s comment) One of the scariest times of my whole life, to date.
I spent 8 weeks in Hospital, that’s when they found I also had a hiatus hernia, so something good came from something bad, I remember saying to my Nan after they put me on these white chalk tasting tablets, ‘these are just yuck, I won’t be on these for long’ Little did I know 3 years one 3 times a day. Then I was put onto Omeprazole at 25 back then my Dr said these are a £1 a tablet. This small tablet changed my life I still take it now and if I forget by dinner time I feel ill.
As your Child gets older things should get easier for you, and like me they will find their way to cope with things sticking, trust me I know, in 7 days time I will be 52. (10-8-62) I hope this website has helped in some way for you. Getting the awareness of your child’s condition noticed and understood more is now down to you. I have a saying which goes like this.(there’s no point in worrying about something you can’t change. But If you can change it, why worry) x
My Scar as it looks now, at 53, or the Shark Bite as it looks now lol Used to scuba dive, had some really funny looks
When you think it can not get any worse
I suffer badly with constipation, always have done, this is a true story when I was about 46, I had just had my dinner and I started to feel really unwell, so I went upstairs to the toilet, which was next to Josie’s room, she was young at the time. I remember I started to sweat real bad which is strange as I never really do, I started coughing, to be honest, I didn’t know what to do with myself, I felt sick, the pain in my stomach was getting worse too, Sam my wife came up and asked if I was ok? as my coughing had woken Josie up.
I remember thinking I need to contain this so I stripped to pants and T-shirt and got into the bath, where the thought was, it would be easier to clean. The pain, the coughing the sweating just got worse that my wife called for the Paramedics on an emergency No. They came fast but I was also in for a shock, they were not happy that I had climbed into the bath because they had to somehow get me out. I remember being put on a seat so they could carry me down the stairs, I remember very well Josie crying and saying, my daddy not well. Even to this day if I cough badly she gets all funny with me.
I was taken to the ambulance parked up outside our house, my mother-in-law turning up to look after Josie. The crew had no idea what was wrong with me, but my heart rate dropped, and they had to stop I remember, on the way to hospital my heart rate dropped again, on reaching the Hospital the team were waiting for us, they were on it in a second, then panic set in, unbeknown to me my heart rate dropped to 19 beats, they pulled my wife into a side room and told her I might not make it. (I think it had something to do with Hospital feeling like home, and knowing I was home I relaxed) so from an already low heartbeat, it just went lower.
while there in the middle of all this, a nurse inserted a catheter into my private bits, which hurt like hell, but I wasn’t happy to hear someone then say its the wrong size it needs to be changed….. like it hurt enough the first time around lol. maybe it was this that brought my heart beat back up?
I was placed in a ward nearby, and my Wife was allowed to sit with me, if I am honest I don’t remember much after this. The English NHS Hospitals did have a lot of foreign nurses on the wards at this time, I remember coming to and thinking where the hell am I as the nurses were not talking English, which I found unnerving, to be honest. One such time one came to my bed pulled the curtains around my bed, while my Sister sat there, (who herself was a Staff Nurse on an intensive-care ward) this foreign nurse had not asked who she was and started to undress me for a good old famous NHS bed bath. I mean I am close to my Sister but not that close lol. I heard a few words from my Sister to the nurse before Helen left.
Ok so after two days on the small ward they decided to transfer me to a different ward. So I am loaded onto a transport bad for the ride upstairs, on route, I had two foreign nurses, and two English porters, now I like a bit of banter like most, and the porters were teasing these nurses, in the lift we went, and there was a quiet bang, no one took much notice…….
Until I screamed with such pain in my lower bits, the slight bang was the catheter bottle falling off the trolly bed the wrong side of the lift doors. I have never screamed at a porter like I did at that moment, my bed sheets turned red, this extended my stay in the hospital, for a longer time, the reason I was there in the first place was due to constipation, although I had been going it seems, not enough. At the time it was not funny, over time we have come to laugh about it all. Plus I have learned a few things from all this.
Never get in the Bath…. if feeling unwell
Plus I never made a complaint against the nurses or porters, as I was most likely in the middle of the banter between them, and they knew they had messed up.
Two funny stories that came to my mind today, these happened to me.
1st/ As you may already know, some of us old folk, though the use of some types of early drugs has a yellow tint to our teeth, not white. Plus our teeth are weak in makeup. In my 20’s l was having plenty of problems with my teeth, some just broke when eating bread, so l had to be mindful of this. I had to go to the Dentist to have a wisdom teeth taken out because the side broke off. The Dentist drugged me up and out came the tooth and home I walked. A few hours later l woke up in a hospital bed on the (DRUGS OVERDOSE WARD) on my way home I had fallen over in the street and someone had phoned for an ambulance, l was out cold away with the fairies, the Dentist had, in fact, overdosed me. I spent 3 days in that ward before they let me home, and 7 days off work to allow for the drug to leave my body.
2nd/ While in Hospital waiting to have something removed in my late teens, I was in the theatre when the Dr said open your mouth while l spray the back of your throat, I said, so your not doing this under general anesthetic? Nope he said, so I swung my legs over the side of the trolley, hopped down and with my hospital gown flapping like it always did, I headed for the door, He said, where are you off to, I am going back to my bed …… until you do this under what I had signed for, It won’t hurt Dr said, I replied so you have had it done yourself ?? No, but it won’t hurt…… I had walked halfway across the Hospital to my ward when the Staff Nurse got to me telling me they were going to do it under general.
After returning back to the ward on a trolley after the op, I felt rough, to say the least, I hurt, it felt like I had run miles and been involved in a punch up, my chest, arms, legs were bruised ????? When I asked Staff Nurse why l looked like I’d been in a fight, she said that I’d had a very bad reaction to the general anaesthetic on the way back from the theatre, and the only way to have stopped me from bouncing off the trolley was for two people to have sat on me ……………. I always thought about that day, why it was that happened, I guess the Dr didn’t like getting flashed by my backside as I walked out of his theatre lol (Joke)