Parents of a Charge Child
Hello, welcome to “Our World”. This site could have probably more accurately been titled “in CHARGE of our world” Our entire family is featured here, but the site highlights a particular member of our family.Noah is now 7 years old. I began this site three years ago, when he was 4, in order to share the courageous story of my extraordinary little boy and also to increase awareness of a little-known syndrome, known as CHARGE syndrome. Noah has affected all of our lives in such a positive way. We are proud to be able to “show him off”
Lizzy’s life living with GA-1
I’ve had another fantastic weekend. The weather was amazing too. Back to school tomorrow I’m super excited about that. I’ve missed all my friends, my condition means I was born 1 in 40,000, my Mother does my Facebook page click the link below and visit me on the page.