My Child Needs Help Born Unable To Swallow

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My Child Needs Help Born Unable To Swallow

10th September 2020

Trinity was born with Tracheoesophageal fistula (TEF) is an abnormal connection between the upper part of the esophagus and the trachea or windpipe.

She has spent most of her life at the children’s hospital in Milwaukee. She had Fundoplication, dilation, and stent placement on the 22nd of July and has had complications from that. She had labored breathing and fever spikes. Sunday, August 23 Trinity was taken back to children’s hospital her oxygen was in the upper 70’s with being on oxygen its sill in the low 90’s.

Trinity has been blessed with the opportunity to go to John’s Hopkins All Children’s hospital in St. Petersburg FL. Since all family and support are in Wisconsin in setting this go fund me page for them so they can have one less burden while they are there.

This will help with anything not covered by insurance. The family has been through so much in the past eight months they are trying to get the best care for Trinity.

9th Sept 2020

After 19 long days, we finally made it to Florida. We got here early this afternoon. Trinity is doing good and is still stable. Her doctor ordered a dynamic CT for tomorrow and will perform her posterior tracheoplexy and resection or her esophagus next week. We are staying in an Air BNB because we weren’t able to stay at the Ronald McDonald house.

Transport is coming to get Trinity and I at 7 am tomorrow morning to take us to the plane to go to Florida.

Click the link on the banner to go to the GO FUND ME PAGE.

My Child Needs Help Born Unable To Swallow

A Personally Message from Steve Wyles owner of this site.

I have been able to help this family by getting a top USA Surgeon to advise on the best way forwards by reviewing the medical records and advising the other team of Doctors free of change the best way to move forwards. This Surgeon was Dr. Steven Rothenberg.

This is a young Family and needs our help.

23-07-2020

Trinity is going to need another major surgery. She has been in the hospital for two weeks and will be in the hospital for at least 2-3 more weeks. I’m starting a go fund me to help Wally and Jen with the added cost of transportation and extra expenses of being in the hospital. Wally is unable to be with his family because he needs to be at work to support his family. He would want nothing more than to be with his daughter and fiance.

23-07-2020

The nurse came in to update us a little bit ago. They are going to lower Trinity’s sedation meds to make sure she’s fully awake around 12 pm. At 1 pm they are going to extubate her from the vent and see how she does. She’s been wide awake for a while now and so ready to have that tube out. She’s very vocal normally and with the tube, she can’t make a sound and she hates that the most I think. I can’t wait till it’s out so I can hold her(when she has the breathing tube in we can’t hold her ). Since they aren’t extibating her till so late in the day the nurse said she’ll probably stay in the PICU another night to be monitored and if everything goes good she should be able to go to an acute care floor sometime tomorrow.

Trinity did well through the night. They have been weaning her off the vent slowly and she is only getting a little help for it now. She has been waking up on and off since late last night and this morning has been awake a lot. I think she’s ready for the tube to be out. One of the surgeons came around a little while ago and said they still hope to extubate (take out the breathing tube) today. They should be coming back soon to tell us the plan for today.

Mum and Dad would like to thank the – Tef – Team at the Children’s of Wisconsin Hospital, 8915 W Connell Ct, Milwaukee, WI 53226 USA for working with a Surgeon from outside their own Hospital, and all the staff involved with their Daughters care.

My Child Needs Help Born Unable To Swallow

6-2-2020

I WAS BORN WITHOUT SWALLOWING …. ESOPHAGUS ATRESA

Verito Piñan Torres is organizing this fundraiser.

My 2-year-old daughter who was born with a disease considered catastrophic and rare since 3,500 children 1 is born with this birth pathology that is detected after birth,

this condition does not allow them to swallow since their esophagus is not connected to their stomach.

Her esophagus was corrected on the 4th day of birth. It was not immediately because the surgeon works in a private hospital outside the city where we live 2 hours away, fortunately, the surgery was a success and they managed to join Los Cabos of her esophagus.

Unfortunately, this disease involves and manifests itself with other problems that were detected with medical studies by means of an esophagogram such as Gastroesophageal Reflux, Stenosis in the area of ​​surgery and Respiratory Complications such as Pneumonia, broncho-aspirations, bronchiolitis, synovial symptoms, and bronchopneumonia in its 2 years of life has had 8 hospitalizations that have been overcome and a dilatation of the stenosis in the operating room and under anesthesia, so you can eat without difficulty.

In order to have health, we have had to pay for private medical expenses because, for public attention and social security, we have not found specialists who can attend to their medical emergencies.
He is currently a patient in a private hospital and has a medical team such as Surgeon, Gastroenterologist, Pulmonologist, Physiotherapists and their Emergency Pediatricians.

Solving these expenses monthly is expensive since we have sold goods and activities have been carried out to raise funds

FOR THIS REASON, WE GO TO SENCIBILIZE YOUR HEART AND THAT CAN HELP US TO WIN THIS BATTLE THAT LIFE HAS GIVEN US …..

IT IS A WONDERFUL GIRL AND IT IS ALL A WAR IN THE PREVIOUS WE THANK YOUR HELP AND LIFE WILL REWARD YOU FOR YOUR HELP.