I asked Dr Russell Jennings of the Boston Children’s Hospital over in the U.S.A if I could post our chat, and he said YES

This is what he said regarding EA-TEF and EA-TEF VACTERL Badges

Hello – I am not very familiar with Facebook. I did receive the package – sorry for the slow response. We are incredibly busy here. I opened it today. The badges are beautiful and appear to be very well made.

(From when this Website sold EA-TEF Badges)

The “cause” is very near and dear to my heart, so I am very supportive!

I agree – much more awareness is needed for these conditions and this is one way to increase awareness! Nice work!

x

OUR Website

Supports this USA CHARITY

Christy’s Courage Foundation is a non-profit foundation

Click here to read our Blog:  christysconnection.blogspot.com

http://christyscourage.org/

501(c)3 Non-Profit Foundation Founded in 2012

~

What is EA/TEF?

Esophageal atresia/tracheoesophageal fistula (EA/TEF) is a condition resulting from abnormal development before birth of the tube that carries food from the mouth to the stomach (the esophagus). During early development, the esophagus and windpipe (trachea) begin as a single tube that normally divides into the two adjacent passages between four and eight weeks after conception. If this separation does not occur properly, EA/TEF is the result.

In esophageal atresia (EA), the upper esophagus does not connect (atresia) to the lower esophagus and stomach. Almost 90 percent of babies born with esophageal atresia also have a tracheoesophageal fistula (TEF), in which the esophagus and the trachea are abnormally connected, allowing fluids from the esophagus to get into the airways and interfere with breathing. A small number of infants have only one of these abnormalities.

There are several types of EA/TEF, classified by the location of the malformation and the structures that are affected. In more than 80 percent of cases, the lower section of the malformed esophagus is connected to the trachea (EA with a distal TEF). Other possible configurations include having the upper section of the malformed esophagus connected to the trachea (EA with a proximal TEF), connections to the trachea from both the upper and lower sections of the malformed esophagus (EA with proximal and distal TEF), an esophagus that is malformed but does not connect to the trachea (isolated EA), and a connection to the trachea from an otherwise normal esophagus (H-type TEF with no EA).

While EA/TEF arises during fetal development, it generally becomes apparent shortly after birth. Saliva, liquids fed to the infant, or digestive fluids may enter the windpipe through the tracheoesophageal fistula, leading to coughing, respiratory distress, and a bluish appearance of the skin or lips (cyanosis). Esophageal atresia blocks liquids fed to the infant from entering the stomach, so they are spit back up, sometimes along with fluids from the respiratory tract. EA/TEF is a life-threatening condition; affected babies generally require surgery to correct the malformation in order to allow feeding and prevent lung damage from repeated exposure to esophageal fluids.

EA/TEF occurs alone (isolated EA/TEF) in about 40 percent of affected individuals. In other cases it occurs with other birth defects or as part of a genetic syndrome (non-isolated or syndromic EA/TEF).

How common is EA/TEF?

EA/TEF occurs in 1 in 3,000 to 5,000 newborns.

ghr.nlm.nih.gov/condition/esophageal-atresia-tracheoesophageal-fistula

~

Video: What’s the Difference Between an IEP and a 504 Plan?

I encourage everyone to watch the video and do research for both plans.

It’s extremely important that you know your parent’s rights, what is available to you & your child and get a advocate that is going to be a fighter and supportive!

https://www.understood.org/en/school-learning/special-services/504-plan/video-whats-the-difference-between-an-iep-and-a-504-plan

6 Tips to Make Sure Your Child’s 504 Plan Is Being Followed

https://www.understood.org/en/school-learning/special-services/504-plan/6-tips-to-make-sure-your-childs-504-plan-is-being-followed

https://www.understood.org/en/school-learning/special-services

~

Independent Living for People with Disabilities

The Independent Living Rehabilitation Program (IL) helps consumers live a more independent life. IL provides an alternative to living in a nursing home or other facility for eligible individuals.

Services are person-centered and may be provided directly, purchased or coordinated through other community resources. If the Independent Living program is unable to meet a person’s needs, that individual may be referred to other partners for services as appropriate.

~

Free Access Pass 2016

Click the link Below

FB_IMG_1466331683079

http://store.usgs.gov/pass/access.html

~

Boston Hospital USA

Boston Children’s Hospital, 10 East Book Drive!

Ends August 2016

Boston Children's Hospital, 10 East Book Drive!  (Boston Children's Hospital, 10 East)

The Story

Boston Children’s Hospital Book Drive!

Hi everyone! I am an RN at Boston Children’s Hospital. I am holding a book drive through Usborne Books & More for my unit. We care for mostly premies, infants and toddlers, but do occasionally get older patients. I’m asking for people to donate just ONE book (or more if you’d like!) to my unit! The books will be added to the library in our activity room, used as prizes after painful/invasive procedures, and as birthday gifts for the little ones who have to spend their birthday with us! 
Many of these babies are hospitalized for several months, or longer! Having someone read books to them can make all the difference in the world! 

1. You can donate any amount of money here! 
No amount is too small (or too large!)

If you would like to donate directly to the unit please use this link

https://g5853.myubam.com/320586,

the event is labeled 10 East! You can have the book(s) shipped.

directly to Boston Children’s Hospital, 10 East, attn Renee Arruda, 300 Longwood Ave, Boston MA 02115

No amount is too small! (or too large!)

Thank you in advance for your donation! ❤️
At the end of the book drive I will post a pic of all we receive! The book drive will end mid August!

Thank you to everyone who has donated so far! 
Please share this fundraiser/book drive!

Please Visit our website and help us reach our goal.

https://www.youcaring.com/boston-children-s-hospital-10-east-593612?fb_action_ids=10154179075868700&fb_action_types=og.comments

~

Ideas we surport

Amys

In starting this website off, I have come to understand that there are some very strong Parents out there. We came across, Audreysarmy, an idea set up to help other Parents, these small websites put the time in to help other please. As with the Small Charity found on the Vacterl – Charge page, Parents like yourself’s doing good for others in memory of their own Child. For this I tip my hat to, and this is why this website total supports what they are trying to do for others, and sometimes its the smaller non-profit ideas that get things dun, than the big Charities.

 Audrey’s Army is excited to announce we are now a non-profit, tax exempt 501(C)(3) organization. All donations made to support our mission are eligible as tax deductible to the extent allowable by law. Please visit our website to learn more about a cutting edge research fund and crickets hope bags. (Please go read their website links below)

Audrey’s Army Facebook page https://www.facebook.com/audresarmy

Their Website link http://www.audreysarmy.com/

usa child

R.I.P Sweet Angel x

~

 I asked Dr Russell Jennings of the Boston Children’s Hospital over in the U.S.A if I could post our chat, and he said YES

This is what he said regarding EA-TEF and EA-TEF VACTERL Badges

Hello – I am not very familiar with Facebook. I did receive the package – sorry for the slow response. We are incredibly busy here. I opened it today. The badges are beautiful and appear to be very well made.

(From when this Website sold EA-TEF Badges)

The “cause” is very near and dear to my heart, so I am very supportive!

I agree – much more awareness is needed for these conditions and this is one way to increase awareness! Nice work!

x

OUR Website

Supports this USA CHARITY

Christy’s Courage Foundation is a non-profit foundation

Click here to read our Blog:  christysconnection.blogspot.com

http://christyscourage.org/

501(c)3 Non-Profit Foundation Founded in 2012

~

What is EA/TEF?

Esophageal atresia/tracheoesophageal fistula (EA/TEF) is a condition resulting from abnormal development before birth of the tube that carries food from the mouth to the stomach (the esophagus). During early development, the esophagus and windpipe (trachea) begin as a single tube that normally divides into the two adjacent passages between four and eight weeks after conception. If this separation does not occur properly, EA/TEF is the result.

In esophageal atresia (EA), the upper esophagus does not connect (atresia) to the lower esophagus and stomach. Almost 90 percent of babies born with esophageal atresia also have a tracheoesophageal fistula (TEF), in which the esophagus and the trachea are abnormally connected, allowing fluids from the esophagus to get into the airways and interfere with breathing. A small number of infants have only one of these abnormalities.

There are several types of EA/TEF, classified by the location of the malformation and the structures that are affected. In more than 80 percent of cases, the lower section of the malformed esophagus is connected to the trachea (EA with a distal TEF). Other possible configurations include having the upper section of the malformed esophagus connected to the trachea (EA with a proximal TEF), connections to the trachea from both the upper and lower sections of the malformed esophagus (EA with proximal and distal TEF), an esophagus that is malformed but does not connect to the trachea (isolated EA), and a connection to the trachea from an otherwise normal esophagus (H-type TEF with no EA).

While EA/TEF arises during fetal development, it generally becomes apparent shortly after birth. Saliva, liquids fed to the infant, or digestive fluids may enter the windpipe through the tracheoesophageal fistula, leading to coughing, respiratory distress, and a bluish appearance of the skin or lips (cyanosis). Esophageal atresia blocks liquids fed to the infant from entering the stomach, so they are spit back up, sometimes along with fluids from the respiratory tract. EA/TEF is a life-threatening condition; affected babies generally require surgery to correct the malformation in order to allow feeding and prevent lung damage from repeated exposure to esophageal fluids.

EA/TEF occurs alone (isolated EA/TEF) in about 40 percent of affected individuals. In other cases it occurs with other birth defects or as part of a genetic syndrome (non-isolated or syndromic EA/TEF).

How common is EA/TEF?

EA/TEF occurs in 1 in 3,000 to 5,000 newborns.

ghr.nlm.nih.gov/condition/esophageal-atresia-tracheoesophageal-fistula

~

Video: What’s the Difference Between an IEP and a 504 Plan?

I encourage everyone to watch the video and do research for both plans.

It’s extremely important that you know your parent’s rights, what is available to you & your child and get a advocate that is going to be a fighter and supportive!

https://www.understood.org/en/school-learning/special-services/504-plan/video-whats-the-difference-between-an-iep-and-a-504-plan

6 Tips to Make Sure Your Child’s 504 Plan Is Being Followed

https://www.understood.org/en/school-learning/special-services/504-plan/6-tips-to-make-sure-your-childs-504-plan-is-being-followed

https://www.understood.org/en/school-learning/special-services

~

Independent Living for People with Disabilities

The Independent Living Rehabilitation Program (IL) helps consumers live a more independent life. IL provides an alternative to living in a nursing home or other facility for eligible individuals.

Services are person-centered and may be provided directly, purchased or coordinated through other community resources. If the Independent Living program is unable to meet a person’s needs, that individual may be referred to other partners for services as appropriate.

~

Free Access Pass 2016

Click the link Below

FB_IMG_1466331683079

http://store.usgs.gov/pass/access.html

~

Boston Hospital USA

Boston Children’s Hospital, 10 East Book Drive!

Ends August 2016

Boston Children's Hospital, 10 East Book Drive!  (Boston Children's Hospital, 10 East)

The Story

Boston Children’s Hospital Book Drive!

Hi everyone! I am an RN at Boston Children’s Hospital. I am holding a book drive through Usborne Books & More for my unit. We care for mostly premies, infants and toddlers, but do occasionally get older patients. I’m asking for people to donate just ONE book (or more if you’d like!) to my unit! The books will be added to the library in our activity room, used as prizes after painful/invasive procedures, and as birthday gifts for the little ones who have to spend their birthday with us! 
Many of these babies are hospitalized for several months, or longer! Having someone read books to them can make all the difference in the world! 

1. You can donate any amount of money here! 
No amount is too small (or too large!)

If you would like to donate directly to the unit please use this link

https://g5853.myubam.com/320586,

the event is labeled 10 East! You can have the book(s) shipped.

directly to Boston Children’s Hospital, 10 East, attn Renee Arruda, 300 Longwood Ave, Boston MA 02115

No amount is too small! (or too large!)

Thank you in advance for your donation! ❤️
At the end of the book drive I will post a pic of all we receive! The book drive will end mid August!

Thank you to everyone who has donated so far! 
Please share this fundraiser/book drive!

Please Visit our website and help us reach our goal.

https://www.youcaring.com/boston-children-s-hospital-10-east-593612?fb_action_ids=10154179075868700&fb_action_types=og.comments

~

useful websites USA

State Medicaid & CHIP Profiles

Every state’s Medicaid and CHIP program is changing and improving – most states are expanding coverage for low-income adults; all states are modernizing their Medicaid/CHIP eligibility, enrollment and renewal processes and systems, and taking advantage of many of the new flexibilities provided by the Affordable Care Act. Finally, states are coordinating the application and enrollment process with the messaging and policies for the Health Insurance Marketplace operating in their state to ensure that there is no wrong door to coverage. 

Click on the map below or select from drop-down to see each state’s Medicaid and CHIP profile.

OPEN THE LINK TO FIND OUT MORE

http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-State/By-State.html

Independent School Search – Find and Compare Schools UK and Worldwide

www.isbi.com

Welcome to Disability.gov, the U.S. federal government website for information on disability programs and services nationwide.

www.disability.gov/

If you need help with a claim, contact the Social Security Administration

www.ssab.gov/

USA GOV on HOUSING and RENTING ETC

portal.hud.gov/hudportal/HUD?src=/groups

Medicaid Home _ HEALTH

www.medicaid.gov/

hosp.org/who-we-are

HelpHOPELive Fundraising
Tell us a little about the reason for the fundraising campaign and we’ll help you make the best choice for fundraising.
https://helphopelive.org/

The National Patient Travel Center provides information about all forms of charitable, long-distance medically-related transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network.

The purpose of the National Patient Travel Center is to ensure that no financially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical transportation.

http://www.patienttravel.org/

Children with Medical Handicaps (BCMH)

The Children with Medical Handicaps Program (BCMH) is a health care program in the Ohio Department of Health (ODH). BCMH links families of children with special health care needs to a network of quality providers and helps families obtain payment for the services their children need.

BCMH’s mission is to assure, through the development and support of high quality, coordinated systems, that children with special health care needs and their families obtain comprehensive care and services that are family centered, community based and culturally sensitive.

http://www.odh.ohio.gov/odhPrograms/cmh/cwmh/bcmh1.aspx

 

Useful Links...