Support Group for Born Unable to Swallow Ea-Tef – Tof-oa

Below you will see the Facebook Support Group linked to this site

Also details and who are linked and give their time for Free

Support Group for Born Unable to Swallow Ea-Tef – Tof-oa

This is a Personal Shout out to the company that this website is run by. Madison Web Solutions, at the start of this website’s life, just after a few years of being on the internet, a Charity here in the UK tried to shut it down, by writing to the MD of this website firm telling him this nonprofit site needed to be closed?

After that letter the company now picks up the running costs of this site, knowing how much good the site is doing across the world, and understanding that the site makes nothing, unlike charities.

Web Design, Branding, Marketing and Development Services | Madison (madisonsolutions.co.uk)

Support Group for Born Unable to Swallow Ea-Tef – Tof-oa

MEET the TEAM

Stephen Wyles

Stephen Wyles (UK) Adult Tof – Admin in Support Group

Born in England in 1962 his story is found on this site.

Born in 1962 Unable to Swallow (birth-defect.org)

Sue Paul

Sue Paul (U.S.A) Widow of Adult Tef – Admin in Support Group

Sue Paul Widow of Ea-Tef and Campaigner for Awareness (birth-defect.org)

Rajan Garg

(Peds) Surgeon  – Admin in Support Group

Simon Ilett

 (UK) Our Graphics Guy

Madzia Fraszczyk

 (UK) Tof Mum – Admin in Support Group

Our Son Filip was born Unable to Swallow and with other health issues Dances Ballroom and Latin (birth-defect.org)

Ivone RL Campo

 (USA) Mum of Adult Tef – Admin in Support Group

Sarah Boury

Young Adult – Admin in Support Group

Sarah Joanne Boury Adult born with Ea-Tef makes it onto TV (birth-defect.org)

Scott – (Australia) Helper

Danielle M. Drummond (U.S.A) Helper

The Support Group.

The Support Group is known on FaceBook as 

Born unable to Swallow Esophageal Atresia and Tracheoesophageal Fistula