Helpful Links
Running Blogs from those living the life
follow the Family’s of Parents writing blogs as they go
Helpful Links
Our CHARGE Syndrome Journey Blog
The Troupe’s are a homeschooling family of seven living in the Western Michigan area.
Helpful Links
Our Hero Draven
He was later at the age of 15months diagnosed with a terminal illness called DMD
Helpful Links
Sarah’s Live Blog living with EA-TEF
Adult Born with Esophageal Atresia and Tracheoesophageal Fistula (EA/TEF)
Sue Paul Widow of Ea-Tef
Esophageal Atresia For Adults
Helpful Links
A Mothers Story
Her child is born with Tef – MCADD – CHD – Macrocephaly
New Parents write a blog - life with a Ea-Tef Child
Written so others have an understanding of what if..
