Born Unable to Swallow

Note all our logos etc are FREE to copy and use.

We are a small team, with BIG ideas. Together, we are making a difference for families and providers.

We are connecting and networking around the world to get answers to YOUR medical and social needs. Our mission is simple: Solutions.
Why? Because it’s time, and we know the struggle is real being born unable to swallow. Let us work together.
United We Stand
We are supported by the leading innovators in esophageal solutions. Pioneers such as Boston’s Children’s Hospital, Columbia Medical Center, The University of North Carolina at Chapel Hill. Plus our team is linking up with the Surgeons at the world-known Johns Hopkins All Children’s Hospital  (JHAC) for us, it is exciting times ahead in 2021.

If you go to the Menu – Support page, you will find other world Hospitals that can be found on this site, showing support for this site. Plus a list of World Surgeons we have talked to, like – (Professors Dr. Evan S. Dellon & Dr. Michael O. Meyers at the University of North Carolina @Chapel Hill, North Carolina, USA who worked with us on the Two Medical Papers Steve Wyles and Sue Paul are down as Co-Authors on)

At the bottom of this page, you can see this site holds 3 Endorsements, Doctor / Surgeon Steven Rothenberg – Rocky Mountain Hospital for Children USA. Dan von Allmen, Professor of Surgery, University of Cincinnati USA. Dr. Cristobal Abello MD Pediatric Surgeon, CMIpediatric International Clinic of Barranquilla Colombia.

Doctors dedicating themselves, and their groundbreaking techniques to us, because they care.

We care. We are 100% Non-Profit.

Our research efforts have resulted in published studies and together we are making a difference. We provide education, resources, awareness posters, and who we are connected to our medical professionals paving the road to esophageal solutions. If you have a medical question, if you need to travel to get to a medical provider, if you think you are alone and need support, WE ARE HERE. We have answers and solutions. We know because we are EA survivors, who fully understand how hard it is to get difficult questions answered.

We are The Birth-Defect Team.

Stephen Wyles and Sue Paul hold TWO USA Medical Papers as Co. Authors more on this can be seen on this Website.

Also in September 2020, their full names were added to a third Paper – European Journal of Human Genetics – with their names showing before the EA Charities from around the world, a total honor, the Email read:-

Dear Sue and Steven,

I hope you have both been well.

I wanted to share the good news about the CARE study. Our paper on the genetic analysis of 45 families was accepted for publication in the European Journal of Human Genetics and both of you were acknowledged in the article because your help was truly invaluable.

Thank you again for your support for the study!

Regards,

Priyanka

The link to the article is below:

https://www.nature.com/articles/s41431-020-0680-2

Please look on the page (Ea-Tef  – Tof-Oa Surgeons that support website) Plus look at bottom of this page to see who has endorsed this site.

 This was posted in a group by a Mother from England talking about Stephen Wyles. Dated 25th -07-2019

He didn’t know me but when I reached out in desperation because my baby was born with oesophageal atresia and trachea oesophageal fistula, he was there. He helped me learn about a whole new world. Every day we chatted via messenger.

He gave me hope and assured me I was doing a good job.
Steve your nana would be so proud.
Nearly 2 years on and we are still in contact.

Hopefully one day we will meet X