Nacido incapaz de tragar atresia esofágica

Grupos de habla hispana sobre

atresia esofágica

Spanish Speaking Groups regarding

esophageal atresia

Estamos uniendo manos

Detalles del grupo argentino

What is ATEAR?

Somos padres y parientes de niños nacidos con una enfermedad rara llamada atresia esofágica, así como personas nacidas con esta enfermedad. Todos compartimos el mismo capítulo en nuestras vidas: tener que enfrentar una enfermedad que antes era completamente desconocida para nosotros, y toda la gama de miedos, sentimientos, dudas y decisiones que se abren en la mayoría de los casos sin previo aviso.

We are parents and relatives of children born with a rare disease called esophageal atresia, as well as people born with this disease. We all share the same chapter in our lives: having to face a disease that was previously completely unknown to us, and the whole range of fears, feelings, doubts, and decisions that are opened in most cases without prior notice.

El apoyo del personal de salud ha sido fundamental para nosotros, sus explicaciones, sus palabras de aliento, su paciencia … También hemos aprendido de las experiencias de otras familias que estaban experimentando situaciones similares de preocupación, y de pacientes y padres que en otros los países habían creado asociaciones de familiares de personas con atresia esofágica.

The support of the health personnel has been fundamental for us, their explanations, their words of encouragement, their patience … We have also learned from experiences of other families who were experiencing similar situations of concern, and from patients and parents who in other countries had created associations of relatives of people with esophageal atresia.

Los objetivos de nuestra asociación, inspirados en los de asociaciones ya existentes en otros países, son:

The objectives of our association, inspired by those of associations already existing in other countries, are:

Boost dissemination and knowledge
Publicize the disease esophageal atresia and disseminate advances and medical news about esophageal atresia.

Facilitate a shared space
Create a space in which families and patients with esophageal atresia can share
doubts and experiences.

Link family and professionals
Contact families and professionals related to esophageal atresia.

Facilitate progress on the disease
Promote a discussion forum on issues related to the disease.

Support family and patients
Know and meet the needs of families and patients with esophageal atresia. Support families in the medical, school and social fields.

Promote initiatives around the disease
Promote informative and informative activities that serve as a meeting point
(meetings, conferences, social and recreational events).